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The war on cancer has failed our children. Since President Nixon's famous
1971 declaration of a national effort against all forms of cancer, the number
of childhood cases diagnosed each year has risen steadily. Despite substantial
advances in treatment, cancer remains the leading cause of death by disease
among children. More children are being diagnosed with deadly cancers with
each passing year, while cancer rates for adults have declined since their
peak in 1992.
Childhood cancer incidence overall has
risen by 33 percent since Nixon's
declaration; brain and other nervous-system
cancers in young children have increased
by over 50 percent; and the incidence of
non-Hodgkin's lymphoma in teenagers has
more than doubled.
The prospects for the future are not good
either. Scientists only began to take note of
these trends in the late 1990s, and a decade
later, researchers are stumped as to what is
causing these sustained increases in
childhood cancer incidence rates. The
disease is difficult to study because its causes
are generally unknown and the possibilities
present a complex puzzle.
The rising cancer rates are just one
indicator of broader trends affecting children's health. Autism rates in this decade are tenfold more than in previous decades, and
childhood obesity rates have tripled since
the 1970s. Many other child health
problems are also worsening, including low
birth weight, asthma, allergies, diabetes, and
mental health disorders.
While doctors have been increasingly
successful in treating many childhood
cancers, we lack a clear understanding of
what lies at the root of these increases in
disease rates. The causes are widely
unknown because we are studying disease
late in its course, in an uncoordinated
fashion, and using surveillance that is
incomplete or non-existent.
The nation needs a systematic effort to
stop the rise in childhood diseases. A strategy
focusing on childhood cancer could provide
a template for fighting other diseases.
Cancer's relatively high mortality rate, its rising
incidence rates, and its scientific complexity
make it an ideal candidate for such an
initiative. The model used to uncover truths
about the rises in childhood cancer incidence
may illuminate approaches to other
comparably serious diseases in children and
adults.
The Progressive Policy Institute proposes
that Congress adopt a strategy for conquering
childhood diseases based on the following
policies:
The nation's premier cancer database
covers only one-fourth of the population.
Personal electronic health-record accounts
would enable monitoring of disease
incidence in real time across the entire
population. Each American should have a
secure and private electronic record for all
of his or her medical information. Patients or
their parents could authorize scientists to
conduct approved studies and public-health
surveillance programs to view their records
without divulging their identity or releasing
their records to a government database.
Independent Heath Record Trusts would issue
and maintain such accounts, as Reps. Dennis
Moore (D-Kan.) and Paul Ryan (R-Wisc.) have
proposed.
These studies would carefully follow the
health of thousands of individuals from before
birth to age 21. They will help identify the
causes of childhood health problems. The
Bush administration has opposed funding for
the study and tried to end it before it got
underway. Fortunately, Congress started
funding the study last year, but funding is at
risk again this year due to White House
opposition.
Congress can and should apply this same
strategy to other major childhood diseases
such as autism and immune-related disorders
such Type 1 diabetes, asthma, and food
allergies. A joint effort would draw support
from the hundreds of thousands of families
struggling with these debilitating and life-threatening
diseases.
Read the full report...